American Research Journal of Nursing

Congenital Heart diseases (CHD) are considered the most common severe congenital anomalies among infants. Present studies revealed that quality of life associated with long life caring process has been improved through understanding the parents’ lived experience of infants with CHD. In Jordan, no studies were published to determine parents’ lived experience. This present study is conducted to explore parents’ lived experience of the child with CHD in Jordan. This descriptive phenomenological study was conducted at Queen Alia Center for Cardiac Surgery in Royal Medical Services /Jordan, from February to April (2019). A sample of 11 parents of infants with CHD were invited to participate in a semi-structured recorded interview over 90 minutes. This interview utilizing Colaizzi’ methods (1978) and extracting four thematic statements: “Fear of uncertainty and the unknown”, “Mothers’ fatigability in caring process”, “Knowing alleviate anxiety, tension and stress”, “Spiritualization and socialization being as helpful in coping process”. Recognition and enrichment of parents’ knowledge using teaching programs or handouts were found to be useful